The Avenue of Miracles

I don’t know if you believe in miracles or not, but this is the story of two kinds; one miracle of physical  healing for my daughter Samantha and the other, an amazing community response that felt as much like a miracle as my daughter’s actual healing experience.  I share this story out of deep gratitude for all the people of faith that I consider my friends. I give glory to our amazing God, who loves each and everyone one of us and listens and responds to our pleas in times of crisis.  I am thankful for the many circles of friends and acquaintances who responded with prayers, love, kindness and practical help when we needed it most.

 

 

The Avenue of Miracles

Samantha, my 19 year old daughter who has autism, had been breathing very loudly as of late and no one could really figure out why. I was convinced she had some kind of asthma, although the pediatrician didn’t seem concerned. But late one Sunday afternoon, her breathing became more labored than usual so my husband and I agreed to call the doctor’s office. The nurse heard my concerns and encouraged us to go to our local Children’s hospital ER so off we went.   Although we were thankfully sent right through without much of a wait, the long process began of trying to diagnose Samantha’s breathing problem.  By 11:00 pm, the ENT on call was worried about her declining condition and scheduled her for emergency surgery. He planned to insert a camera down her throat to determine what, if anything, was blocking her airway.

Tracheal Stenosis narrowing Samantha’s airway

At approximately 1:30 am, Dr. Reeves found us in the eerily quiet waiting room and explained what he found. Samantha’s airway was blocked by a tracheal stenosis that left an incredibly narrow airway. He had pushed back the scar tissue as best as he could and inserted a breathing tube. They would now treat with steroids and wait.   Having never been in the PICU, my husband and I were overwhelmed with concern and probably in shock. We left Samantha at 3:00 am, barely able to comprehend that our little girl lay motionless, with tubes everywhere and a machine breathing for her.   We went home for a few hours’ sleep (we are lucky to live within minutes of the hospital).

 

I arrived early the next morning to hear the doctors during rounds. The news was basically “wait and see”. We now knew she also had tested positive for two viruses and her lungs were somewhat compromised.   Friends began calling and texting, eager for news and to help. I posted on my Facebook page and sent an urgent request for prayer to family and friends by email. I was exhausted though and at a loss as to what more I could do.

 

CHKD-Children’s Hospital of the King’s Daughters, Norfolk, VA

It hit me early the next morning that the absolute most important thing I could do was pray. Well, I knew lots of people who could help with that! So I began to put a plan together. I sent out an invitation for friends to come to the small hospital chapel at CHKD to pray at a designated time. Many people on Facebook, not able to make it to the hospital, shared that they too would be praying at 3:00 pm on Tuesday.   Knowing quite a few clergy in the area, I asked several to come to the hospital as well. Our designated approved visitors list, which only allowed for 10 guests and one clergy, grew as Pastor Craig Wansink, Pastor Jack Howell and Deacon Derek Turrietta all made trips to the hospital.  The nurses seemed a bit confused (and I think they may have thought I was trying to game the system) but let them all in anyway.

 

On Tuesday at 3:00 pm, Samantha still lay motionless, now with a chest tube because one of her lungs had collapsed in the night.  My friends, Elizabeth, Rebecca, Karen, and Susan surrounded me with love as I let them pray the words I could not manage to speak aloud. We prayed for complete healing, for a clear airway, for Samantha’s comfort and protective calmness as she awoke out of sedation after the procedure scheduled for Thursday. I cried and cried, yet felt peace as my friends lifted Samantha up in prayer.

 

And then we waited some more.

 

Thursday afternoon finally came and Samantha was briskly wheeled back into the OR. Dr. Reeves told us he would attempt to push back the scar tissue some more and get a biopsy, as we still had no idea why the stenosis had formed in the first place. We settled in to wait the expected hour or more in the PICU waiting room.   Less than 30 minutes later, the doctor found us. Somewhat surprised he was back so soon, Dr. Reeves began his report.  All the news was good, he proclaimed.  In fact, he explained that he had gone back in with the camera and found nothing. He proceeded to show us the picture of Samantha’s completely cleared trachea. “There was nothing there to biopsy”, he continued, “and I see no reason to have to repeat the procedure in the future”, as he had cautioned us about the very first night. Through tears, I listened to him finish by saying he had never seen anything like this and no idea how the stenosis had completely, “resolved”, yet the picture was proof that Samantha had an absolutely unobstructed airway.

 

Of course, I knew immediately how it happened- the power of prayer. Hundreds of family and friends prayed on Samantha’s behalf, a whole community behind us… and the result? Our own miracle for our precious daughter Samantha.

 

The road to recovery has been slower than we expected. Coming off the heavy medication was difficult but she is improving every day.  Samantha was also diagnosed with Type 2 diabetes in the hospital and we are trying to manage this new medical challenge.

Today I am overwhelmed with a life-changing gratitude. As I continue to process the experience, I am immensely thankful for the help and responses of my many circles of friends during this crisis. My neighbors and close girlfriends made sure my house was clean and food in the refrigerator at home the whole seven days we were in the hospital, other friends brought meals to me in the waiting room and friends from my school who are employees of the hospital checked in religiously.  Still others took over the many details of the upcoming FIN National Faith and Disability Leaders Retreat and That All May Worship Conference, taking care of last minute preparations and ensuring all the events would proceed as planned, whether or not we were out of the hospital.   But most of all, the prayers and Facebook comments of those near and far sustained me, leading to what I accept as a healing miracle for Samantha. My community embraced us like never before, an example of how very important and powerful relationships and community support can be. As Director of Faith Inclusion Network, I have always believed in the importance of a strong faith community and making it available to everyone. As the mom to a child who was critically ill and healed through faith, I have a new and more personal definition. Because now, I clearly see community as God’s gift to us, a way in which He sometimes chooses to bless us with his power here on earth. Community, therefore, is many things, but for us, it was the avenue of miracles.   Glory to you O Lord. Amen.