Category Archives: Autism

Lead with Love

If you have a disability or are the parent or guardian of someone with a disability, then you are very familiar with assessments for eligibility of services. These assessments are designed to identify whether  or not an individual requires support of some kind which would then lead to the kinds of intervention or available services. Assessments can be just a few minutes long or take hours and hours and require you to answer hundreds of questions.
As the parent of a young adult with severe autism, I have sat through my fair share of assessments and can assure you that they usually are not fun. This is mainly because the whole reason for the questions is to determine what my child can not do, what her weaknesses are, and why she needs support for daily living, etc.
No one wants to have to spend time focusing solely on their child’s weaknesses, because, …

“Julia” and Autism Awareness and Acceptance Month

When you are part of a family who has a member with Autism, the month of April is going to mean something to you. You may be the person who embraces Autism Awareness and Acceptance month, sharing everything on Facebook that you see or maybe you have an opposite reaction and can’t help but feel a bit weary of the need to constantly promote awareness. 
But whether you have strong feelings one way or the other or are ambivalent about the whole idea, the world (yes, the entire world) has embraced April as Autism Awareness and Acceptance Month and I believe it is here to stay.
With that in mind, I began a very intentional Facebook campaign in April on our Faith Inclusion Network Facebook page. My goal was to take 30 separate photos of individuals, families, businesses, faith communities and other organization representatives that are involved with FIN and somehow, either …

Acceptance

“I’m a bit nervous”, I confessed to my husband as I prepared for my speaking engagement at Temple Israel in Norfolk, VA.  Despite the friendship, support and encouragement I have received from Rabbi Michael Panitz over the past 10 years as I worked to start and develop Faith Inclusion Network, I had actually never been asked to speak there or for any other local Jewish congregations.  Would they really be interested in hearing some of my story? Would they accept and welcome me, a Catholic Christian, to be a part of their service?
I prepped my daughter’s caretaker and headed over in plenty of time to hear some of the beginning of Temple Israel’s Disabilities Awareness Shabbat. February is designated as Jewish Disability, Awareness, Acceptance and Inclusion Month in our country and I had been asked to share a few words about inclusion as both a parent of child with a …

A Christmas Extravaganza

As most people are aware who know me through FIN and the disability community, my daughter Samantha is severely affected by autism. The past couple of years especially, have been a struggle as we help her through some challenging anxiety and medically related issues. For Samantha and many other people in our community with severe developmental disabilities, it can be very difficult to participate in community events and gatherings. Instead of risking a meltdown or maybe not even being able to get in the door because of anxiety, we opt to stay home.
Yet the social, community-loving person in me never gives up and I am grateful to the many organizations and faith communities in Hampton Roads that are striving to be welcoming, understanding and inclusive, making it easier to participate in the community.  From organizations like Virginia Stage Company that is offering a sensory-friendly performance this week (Theater for …

Essay Contest Blog Series-Blog #1

In preparing for this year’s Gifts of the Heart Gala, I was looking for an opportunity to highlight the voices of those who identify as having a disability. After all, our organization is about inclusion and the most important voice for disability inclusion efforts is (or should be) those who have disabilities themselves. Thus, in addition to our keynote speaker, Lisa Olson, who spoke eloquently about acceptance at the gala, the first Gifts of the Heart Essay Contest was born. 
I really had no idea whether or not anyone would submit an essay but we had a few things going for us. Number one, our good friend and sponsor, John Koehler of Koehler Publishing  offered up the $100 winning prize. Two, I had a vision that our winner and many of the participants would be recognized at our gala on March 11.  
In the end, we had six people enter the contest …

The Parking Lot

I was excited when Virginia Pilot journalist Denise Watson replied to my email about doing a story on Faith Inclusion Network and our upcoming Gifts of the Heart Gala.  I always love to share about FIN and the work we do. After Denise and I talked on the phone, we decided to meet up at my church, Blessed Sacrament Catholic in Norfolk, VA one weekend before Mass to have a picture taken of my daughter Samantha participating at church, a shining example of inclusion as a person severely affected by autism but very much part of our church family.
I knew our Pastor, Fr. Joe Metzger would be fine with the plan, he has always been supportive of our efforts to include Samantha and the various cameras and reporters in the past coming in to film or take photos.  I should have known it would not be that easy this time …