Category Archives: Autism

A Christmas Extravaganza

As most people are aware who know me through FIN and the disability community, my daughter Samantha is severely affected by autism. The past couple of years especially, have been a struggle as we help her through some challenging anxiety and medically related issues. For Samantha and many other people in our community with severe developmental disabilities, it can be very difficult to participate in community events and gatherings. Instead of risking a meltdown or maybe not even being able to get in the door because of anxiety, we opt to stay home.
Yet the social, community-loving person in me never gives up and I am grateful to the many organizations and faith communities in Hampton Roads that are striving to be welcoming, understanding and inclusive, making it easier to participate in the community.  From organizations like Virginia Stage Company that is offering a sensory-friendly performance this week (Theater for …

Essay Contest Blog Series-Blog #1

In preparing for this year’s Gifts of the Heart Gala, I was looking for an opportunity to highlight the voices of those who identify as having a disability. After all, our organization is about inclusion and the most important voice for disability inclusion efforts is (or should be) those who have disabilities themselves. Thus, in addition to our keynote speaker, Lisa Olson, who spoke eloquently about acceptance at the gala, the first Gifts of the Heart Essay Contest was born. 
I really had no idea whether or not anyone would submit an essay but we had a few things going for us. Number one, our good friend and sponsor, John Koehler of Koehler Publishing  offered up the $100 winning prize. Two, I had a vision that our winner and many of the participants would be recognized at our gala on March 11.  
In the end, we had six people enter the contest …

The Parking Lot

I was excited when Virginia Pilot journalist Denise Watson replied to my email about doing a story on Faith Inclusion Network and our upcoming Gifts of the Heart Gala.  I always love to share about FIN and the work we do. After Denise and I talked on the phone, we decided to meet up at my church, Blessed Sacrament Catholic in Norfolk, VA one weekend before Mass to have a picture taken of my daughter Samantha participating at church, a shining example of inclusion as a person severely affected by autism but very much part of our church family.
I knew our Pastor, Fr. Joe Metzger would be fine with the plan, he has always been supportive of our efforts to include Samantha and the various cameras and reporters in the past coming in to film or take photos.  I should have known it would not be that easy this time …

What does it take to be a welcoming faith community?

This morning, my daughter Samantha and I attended Second Presbyterian Church, http://www.spcnorfolk.org/ , a small congregation near the Naval Base in Norfolk. I am well acquainted with the church as they generously house Faith Inclusion Network’s office and I count both Pastor Craig Wansink and Assoc. Pastor Catherine Monroe as personal friends. 
This was only the second time I have worshipped with the Second Presbyterian congregation and the first time I have taken Samantha along with me. I was invited to not only share the song “Let’s Share a Journey”,  https://www.youtube.com/watch?v=D-OmcOXxO_s&t=42s but also had the opportunity to sing and play flute along with their small praise band.
I was excited about participating in the worship Sunday morning but also a bit apprehensive. When I woke up Samantha, who has autism and is quite echolalic at times, I said “It’s time to get ready for church.” She spent the next few minutes repeating, “time for …

Beauty Perseveres

As we come to the end of Autism Awareness month 2017, I would like to thank the contributors to our Autism Moms and Dads Blog Interview Series for sharing a bit about their lives in the world of Autism.  It has been particularly interesting to get the Dad’s perspective this year in addition to the Moms. I have also enjoyed the opportunity to re-connect with both local and national friends and make some new FIN friends along the way. Many thanks to those that interviewed: David Rizzo, dad to Danielle from New Jersey, Ruth and Rick Robins, parents of Tripp in Virginia, Tim Craig, dad to Clinton, from New Jersey, Janet Shouse, mom to Evan Shouse from Tennessee and Michael Hoggatt, dad to Summer from California. You are all an inspiration to me and it was a pleasure to “meet” you and your children through these interviews. 
Blessings to all those …

Autism Moms and Dads Blog Series-Interview #5

 

I “met” Dave a few years ago by phone and was struck by the similarities of our parenting experience, having daughters very close in age.  My family is also Catholic and has worked hard to include our daughter into the life of our local parish and teach her about the Catholic faith. After talking with Dave, I once again realized how important connecting with other parents can be, even if they are in another part of the country.  If you would like to keep up with Dave and his beautiful daughter, Danielle, take a look at their Facebook page, Autism with the Rizzos at https://www.facebook.com/Autism-With-The-Rizzos-281489198616138/
Also, I highly recommend  David’s book,  Faith, Family and Children with Special Needs; Spiritually Able http://www.loyolapress.com/products/books/family-life-and-parenting/faith-family-and-children-with-special-needs and the The Adaptive First Eucharist Preparation Kit https://www.loyolapress.com/products/special-needs/adaptive-learning/adaptive-first-eucharist-preparation-kit , which he helped develop. Both of these are wonderful resources for helping to teach the Catholic faith to persons who have autism.
Interview #5 Dave …